Amniotic band syndrome ndiyo mamiriro ezvinhu anowanikwa neavo mune imwechete ye1200 kusvika kune imwe mumarudzi gumi nemashanu evanhu vanoberekwa varipo. Izvi zvinoita kuti zvive nyore kusangana nazvo, kunyange zvichifungidzirwa kuti zvinowanzoitika munenge 178 kubva pamakumbo ose gumi nemazana gumi. Migumisiro yechirwere ichi inogona kupararira, yakasiyana, uye inotyisa mumhando kubva pakuderera kusvika kune yakaoma.
Zvinokonzera
Kunyange zvazvo paine huripo mhinduro dzakasimba dzechikonzero chinokonzera amniotic band syndrome, iyo inotungamirira pfungwa ndeyokuti kusangana mumimba yekutanga kubata kunotungamirira dambudziko iri.
Amniotic sac inoumbwa nematanda maviri, amnion, uye chorion. Amnion ndiyo yakaswedera pedyo nemwana wako. Izvo zvidimbu zviviri zvakaonda kwazvo uye zvinonamatirana kune mumwe, asi zvichiri kunyatsosiyana zvakasiyana kubva kune mumwe.
Amniotic band syndrome inowanikwa apo zvikamu zve amnion, mukati mechipfuva chemamonio, inoputsa. Iyo michina yeamniotic sac inogona kubatisisa kana kuyambuka chikamu checheche-idzi idzi zvipfeko. Ukubatanidza kunogona kudzivisa kukura, kuteerera ropa, kana zvose zviri zviviri. Izvi zvinogona kuguma nehurukuro dzakaoma dzekuremara kwekuberekwa, kazhinji kusina manhamba kana zvikamu, kunyatsoputika, uye dzimwe nguva mamwe anomalies.
Inofungidzirwa kuti mabhii amniotic anogona kuitika mukudzivirira kwepakutanga uye pakupera kwekuita pamuviri kubva pane zvingaitika zvisingabatsiri pakuzvitakura. Kana izvi zvikaitika pahutachiwana zvinogona kusarudza kuti zvinetso zvichave zvakadini kumwana. Somuenzaniso, pakutanga, njodzi dzinowedzera kuparadza, asi boka rinoratidzika gare gare pakuve nepamuviri ringasava nemigumisiro chero ipi zvayo.
Chii Chinonzi Amniotic Band Syndrome Chinoreva Mucheche Wangu?
Kune runyora rwakakosha rwezvinetso zvinogona kuwirirana nehutano ichi. Mamwe aya ndeadiki, asi mamwe akaoma zvikuru kana kuti anogona kuuraya. Heano mamwe emigumisiro inogona kubva kune iyi:
- Kugadzirisa zvindori kana kurasikirwa kwezvikamu zve kana nhamba dzose (zvigunwe nezvigunwe)
- Kugadzirisa zvindori kana kurasikirwa kwezvikamu zvemuviri kana zvikamu zvose (maoko nemakumbo)
- Kuzvikudza kukuru kwemuviri kwakapfuura boka
- Chikamu maoko kana chikwata tsoka (kunyanya kuchinja kwemaoko kana tsoka)
- Kuchenesa mhepo uye / kana muromo (kupatsanurwa mumuromo kana mukanwa)
- Kushata kwepiso
- Kupera kwepamuviri
- Thoracoschisis (constriction yechipfubu chetemberi)
- Madzi masvingo ekusawirirana
- Encephalocele (a neural tube defect apo chikamu cheropi chinopfuurira kuburikidza nehenya)
- Anencephaly (a neural tube chiremera umo chikamu cheropi nehenya chiripo)
- Kusagadzikana kwemubilical cord (ropa kupa umbilical cord, saka mwana, inogurwa)
- Nhengo-muviri-rusvingo hwakaoma (kusanganiswa kwechinetso chinosanganisira mitezo, uye kazhinji chifu kana mimba yemucheche)
Zvichida Zvinetso Nekuzvimba
Kunyange zvaunofunga nezvemwana wako ndizvo zvakanyanya mupfungwa dzako, kune mashoko anofadza mukuti izvi hachisi chimwe chinhu chinowanzochinja kutora kwako nguva. Kazhinji vanaamai havana zvimwe zvinetso kune ivo pachavo kana pamuviri wavo. Kunyangwe paine pangozi shoma yekupa mwana wako zvishomanana kupfuura nguva.
Imwe nyaya inogona kunge isinganyatsogadziriswa zvakakwana ingangodaro kushungurudzika kwevanhu uye kwepfungwa yekuva nemwana ane chinetso sekuoma kwakafanana neyiyu.
Uyezve, paunotarisa chokwadi chokuti pane zvakawanda zvevamwe vana vane nyaya idzi, kuwana rubatsiro kubva kuvabereki vakambove vari mumamiriro ako ezvinhu hazvive nyore sezvaunogona kutarisira.
Kune dzimwe nzvimbo dziri mumutauro uye nhau kubva kune dzimwe mhuri dzakambove kuburikidza nemamiriro aya, vakawanda vanoda kugoverana newe. Kunyangwe nyaya yacho ingave iyo haungambowaniki kune munhu ane mamiriro ezvinhu chaiwo, akapiwa huwandu hwakawanda hwemikana. Kana iwe ukakwanisa kupinda mune rimwe remakore ekuberekwa anoita chirwere ichi kuti apore amniotic band syndrome, vanogona kuva nepamusoro yekuchengetedzwa kunotsigirwa.
Mukusavapo kwevamwe vanhu vakambova mumamiriro ezvinhu akafanana, kutaurirana nevashandi vanobata nevabereki mumatambudziko vanogona kubatsira. Nharaunda yako yepininatologist kana neonatal yakasimba yekuchengetedza zvigaro inogona kuva neurongwa rwezvinhu, kunyange mwana wako asati aberekwa.
Risk Factors
Sezvo nechinetso chipi nechipi pakuberekwa, isu tinowanzotarisa chikonzero nei izvi zvakaitika. Ichokwadi ndechokuti, tichiri kuedza kuziva chikonzero chaicho chemamniotic band syndrome, iyo inobatanidza kutarisa zvinhu zvinokonzera ngozi. Izvi zvinowedzera zvakaoma nekuti hazvishamisi. Izvozvo zvakati, tine zvimwe zvinotungamirira pane izvo zvinogona kuwedzera dambudziko rekusangana uku kusingawanzoitiki.
Chimwe chidzidzo chakatarisa nevakadzi vashomanana asi vakawana kuti avo vakange vaine ma chirisera mavereine vasati vasvika vakave nepamusoro ye amniotic band syndrome. Imwe yedzidzo yakatarisa njodzi dzekugadzirisa uku mushure me chorionic villus sampling (CVS). Ichi ndicho chimiro chemajini chinotapukira, apo mamwe e chorionic villi anobviswa kuti aone maitiro emwana. Iko pfungwa ndeyokuti puncturing ye sachi amniotic kuitira kuti kugamuchira zvinhu zvinokonzera bhanhire kuti riitike. Panewo mubvunzo pamusoro pekuti kana kwete ingozi imwe chete ingashanda kune amniocentesis , yakaitwa mushure mekuita pamuviri.
Paiva nedzimwe chidzidzo chiduku chakaratidza kuti pakanga pane kuwedzera kwe amniotic band syndrome apo amai vainge vambosangana nemishonga inonzi Misoprostol munguva yekusununguka zvikuru. Izvi zvinowanzopiwa senzira yekuita kuti abvise pamuviri, uye kwete mishonga inowanzopiwa kune vakadzi vane pamuviri.
Panewo zvimwe zvinogona kuisa njodzi izvo zvinozivikanwa nekukonzera marudzi akawanda ekuremara kwekuberekwa uye matambudziko mukudzivirira kunofanira kuderedzwa kana kubviswa kana zvichibvira. Icho chinosanganisira:
- Kusvuta muhutano
- Kushandisa zvinodhaka pakuzvitakura
Ndingazviziva Sei Kana Mwana Wangu Akanga Aine Amniotic Band Syndrome?
Amniotic band syndrome inowanzowanikwa mu ultrasound, asi kazhinji isati yasvika pashure pevhiki yechigumi nembiri yekuzvitakura. Panozove nenzvimbo dzakanzwisiswa neunyanzvi hwe ultrasound kuti uwedzere kudzidza. Izvi zvinowanzoita kuti kuwedzerwa kuwedzerwa kana kuwedzera zvakadzama ultrasound kana kuti inogona kuva MRI. I-MRI inogonawo kubatsira pakucherechedza kuti inguva yakawandisa yakaitwa sei. Mimwe miedzo inogona kurayirwa inosanganisira:
- Targeted Ultrasound (3D)
- Doppler Blood Flow Kudzidza
- Fetal Echocardiogram
Kudzivirira
Parizvino, hapana imwe nzira inozivikanwa kudzivisa amniotic band syndrome kubva kuitika. Kunyange zvazvo tichiona kuti mamwe emhosva yacho angave akabatwa nekuedzwa kusati kwasara, sechirionic villus sampling (CVS), nhamba dzevakadzi vanosarudza kuongororwa kusina kuitika dzakaderera zvakanyanya sezvinoshandiswa zviedzo zvishoma zvishoma.
Pano panewo mazano anowanikwa nezvekuzvitakura kwakanaka kunogona kuteverwa kuti uve nechokwadi chekutengesa kwako zvakanakisisa maererano nekuderedza kusakwana kwepabonde. Izvi zvinowanzotora chikamu chekufungisisa kwekutanga.
Izvo Zvichave Zvakaoma Zvii Zvichave?
Kuoma kwematambudziko kubva kumamniotic band syndrome kunobva pane zvakasiyana-siyana. Izvi zvinosanganisira kutanga kwepamuviri mitezo yakanyatsobatanidzwa kune chikamu chemuviri kana kubuda. Izvo zvakapfuura mukurara izvi zvinowanzoitika, zvinowedzera zvakaoma zvinetso zvinowanzove.
Kurapa
Pane nzira mbiri dzekugadzirisa amniotic band syndrome: vasati vaberekwa kuburikidza nekuvhiyiwa kwe fetus uye mushure mekuberekwa nemhando dzakasiyana-siyana dzekuvhiya uye kurapwa. Muzhinji kacho, amniotic band syndrome haigoni kurapwa kusvikira vaberekwa. Kazhinji, panguva ino, kune kungozvitarisira zviratidzo uye kurapa kurapa kukanganisa kungave kwatoitika. Izvi zvinogona kusanganisira chirwere chepanyama, chirwere chemapfupa, chirwere chemuromo uye maxillofacial, kana kunyange kutarisira kurapa. Mishonga uye kuvhiyiwa zvinoshandiswa zvinobva pane zvikamu zvemuviri zvinokanganisa uye kuoma kwekukuvara.
Kune dzimwe mishonga mitsva iri kuitwa munzvimbo shomanana kuUnited States kuburikidza nekuvhiyiwa kwechimbwa kuti uite dzimwe mamiriro eAmniotic band syndrome panguva yekuzvitakura. Kunyange zvazvo kwete mamiriro ezvinhu ose ari akakodzera kwekuvhiya, iyi inguva hurukuro yaungada kuva nayo neyanyanzvi. Kuvhiya kwemucheche kazhinji kunoda kuti iwe uende kune imwe yezvi nzvimbo zvekurapa uye kuvhiyiwa. Izvi zvinogona kana zvisingatauri kuti iwe unoda kugara pedyo nepakati kusvikira iwe wabereka.
Nokuda kwekuvhiyiwa kwekufukidzira, chironga chepencil tip-sized chinowanikwa muchibereko. Iyo inoshandiswa kuparadzanisa bhenji kuti isunungure bhenji kubva pachikamu kana mumuviri chikamu. Dzimwe nguva zviitiko zvinoshamisa, uye mumwe chiremba anotaura achiti, iyo pakarepo pakushandisa laser kubvisa bhanhire kubva pamakumbo echecheche, gumbo rakashanduka zvakare rose sezvo ropa richidzorerwa zvakare.
Kakavhiringidza uye Ngozi dze Fetal Surgery
Kushandiswa kwekuberekwa kwe fetus pakurapa amniotic band syndrome hakusi kupokana. Mhando mbiri idzi dzakajairika dzekuvhiya dzinosanganisira kubvisa bhanhire rinopisa mutsara wembilical, uyo, kunze kwekuvhiyiwa, mwana angangodaro afa; kana kubvisa bhendi kuti kudzivisa kubudiswa kwechimbwa.
Ngozi dzekuvhiya dzinosanganisira utachiona, zvinetso kubva kune anesthesia, kubereka nguva isati yasvika, nezvimwe zvinetso. Zvengozi izvi zvinogona kunge zvakashata uye zvaireva kuti havasi vose vanotsigira kuita chirwere chekuberekwa kuchengetedza chikamu, nokuti, kana zvakaoma, kubviswa kwechimbwa hachisi chakaipa. Iyi ndeyemitemo yemitemo pakati pevabereki, vashandi, uye maitiro emitemo yezvipatara zvakasiyana-siyana.
Izvozvi hazvina kumboitwa mavhivhi akawanda kana zvidzidzo, asi zvidzidzo zviduku zvakaitwa zvinoratidzira kubudirira kubudirira kwehuwandu hwe50%. Izvi hazvirevi semhando yakawanda yekubudirira, asi kupa ruyero rwekuvhiya kwe fetal uye zvimwe zvipingamupinyi zvekuda kuramba uchiita pamuviri, izvi zvinoonekwa sehuwandu hwekubudirira. Tariro ndeyekuti kuvhiyiwa kwakawanda kunoitwa, iyo yakakwirira ichi chiyero chekubudirira chichava. Izvi zvinowanikwa pakuwana zvakanakisisa zviitiko, asi zvakare mukuchenesa nzira uye mushure-nzira yekuchengetedza.
Izvi Zvichaitikazve Here?
Kana ukaona izvi panguva yaunenge uine pamuviri, unganetseka kana izvi zvichaitikazve munguva inouya pamuviri. Izvi zvinoonekwa sechinhu chisina kudzokorora, zvinoreva kuti hazvizoitiki zvakare. Kunyangwe zviri pachena kuti kana iwe unogona kudzivisa zvinogona kuisa njodzi kana kuderedza kana kuderedza kuitika, unogona kukwanisa kuzvipa rugare rwepfungwa.
Mamwe Mazita
Kune mazita akawanda mazita amniotic band syndrome anogona kudanwa. Izvi zvinosanganisira:
- Amniotic sequence syndrome
- Amniotic banding
- Kugadzirisa ring ring syndrome
- Streeter bands
- ADAM kutevedzera
> Sources:
> Amniotic Band Syndrome. Kucherechedza Kwemucheche Centre yevana Children's Hospital yeWisconsin. http://www.chw.org/medical-care/fetal-concerns-center/conditions/infant-complications/amniotic-band-syndrome/
> Amniotic Band Syndrome. National Organisation for Rare Diseases (NORD). https://rarediseases.org/rare-diseases/amniotic-band-syndrome/
> Barzilay E, Harel Y, Haas J, Berkenstadt M, Katorza E, Achiron R, Gilboa Y. Kuchengetedzwa kwepabonde kweamniotic band syndrome - zvinokonzera ngozi uye ultrasonic zviratidzo. J Matern Fetal Neonatal Med. 2015 Feb; 28 (3): 281-3. doi: 10.3109 / 14767058.2014.915935. Epub 2014 Mbudzi 22.
> Cignini, P., Giorlandino, C., Padula, F., Dugo, N., Cafà, EV, & Spata, A. (2012). Epidemiology uye njodzi dzinokonzerwa neamniotic band syndrome, kana ADAM kutevedzera. Zvinyorwa zvePrenatal Medicine , 6 (4), 59-63.
> Javadian P, Shamshirsaz AA, Haeri S, Ruano R, Ramin SM, Cass D, Olutoye OO, Belfort MA. Perinatal mugumisiro pashure pokunge fetoscopic yakasunungurwa emapoka amniotic: ruzivo rumwechete-uye kugadzirisa mabhuku. Ultrasound Obstet Gynecol. 2013 Oct; 42 (4): 449-55. doi: 10.1002 / uog.12510.