Bhuku reNICU Parent's Rights reMagwaro ndiro chiitiko chakakosha nechinangwa chokubatsira kusimbisa nekudzivirira vanhu.
Bhuku reHurumende inzira yakanaka yokuti vabereki vanzwisise kuti chii chavanokwanisa kukumbira uye kutarisira panguva yavo yekugara kweNICU. Urongwa hwezvinhu gumi zvinokosha ndezvimwewo izvo vashandi veNICU vanofanira kuonga nekuedza kukudza pavanotarisira vabereki vevarwere vavo veNICU.
Munechinguva, tichatarisa imwe neimwe yekutaura 10 muBhuku reMatongerwo eNicU Parent. Asi kutanga, tinofanira kubvunza kuti:
Sei NICU Vabereki Vachida Bhidha Remitemo?
Vacheche vanozvarwa mangwanani-kare, kana avo vanoberekwa vairwara uye vasina simba, vanoda rudzi rwekugadzirira kwekodzero iyo vabereki voga vasingagoni kupa. Ivacheche vanoda rubatsiro rwakanyanya, uye saka anotanga rwendo rwemhuri neNeonatal Intensive Care Unit .
Rwendo urwu ndirwo umo vabereki vangave vaine dzidzo shoma, kunyanya kugadzirira. Zvinonzwa zvakanyanya zvokuti zvakaoma kuti vabereki vadzoke shure uye vafunge nezvezvinangwa zvavo zvakakura uye zviroto nemwana wavo mutsva. Pane kudaro, vabereki vanowanzofunga sokuti vakadzingirwa muchamupupuriro remashoko ekurapa uye zvishandiso zvinoshandiswa, zvakakombwa nevashandi vanoita sevanoziva zvose pamusoro pevana vavo. Zvinopesana kwazvo, kutaura zvishoma.
NICU imwe neimwe pasi pose yakasiyana, iyo inoreva kuti vabereki vanotsigirwa vanogashikana zvakasiyanawo neNICU kuenda kuNICU.
Vamwe vabereki havangambodi Bhiri reZviito kutungamirira vashandi vavo veNICU nokuti vanotsigirwa zvinoshamisa, vaisanganisira, uye vane hanya. Asi zvinosuruvarisa, vamwe vabereki veNICU vanosimbiswa zvishoma, vanonzwa vari voga uye vakavhiringidzika pamusoro pekuti vanogona kusunga sei uye kuti vabatane muhupenyu hwemwana wavo.
Nenzira yakanaka, boka rakatsaurirwa revabereki vane rupo rakange rakaita kuburikidza neruzivo urwu rwakapinda kuzobatsira.
Vanoziva kuti zvakanga zvakaita sei kuva mubereki weNICU mwana, uye vanoziva zvavanoda kuti vawanikwe kwavari kana vana vavo vari muNICU.
Ndiani Akasika NICU Vabereki Bill Wekodzero?
Muna 2013, Preemie Parent Alliance yakanyora iyi mashoko akanaka kwazvo, zvakanyatsofungidzirwa-zvinyorwa zvinoratidza zvinhu gumi zvakakosha kuti zviyeuke pamusoro pezvinoitwa nevabereki veNICU uye kuti vanofanirwa sei kutsigirwa munzira.
Iri sangano-PPA-rinosanganisira vatungamiri vekufunga munyika yePeemie Parent kutsigira, naizvozvo zviripo kuti boka iri revabereki rine ruzivo uye kuzvitsaurira kukwanisa kugadzira rugwaro rwakakosha rwakadaro.
Vakasarudza izvi zvichienderana nekutaura kuti kuchengetedza mhuri-ndiyo nzira yakanakisisa yekutarisira vana nevana vavo. Masangano akawanda ehutano hwehutano akadai seAmerican Academy of Pediatrics, American Hospital Association, uye mamwe mazano ekusimbisa mhuri-senzira inokosha yekupa zvakanakisisa kuvarwere. Uye nechikonzero chakanakisisa-zvidzidzo zvakawanda zvekutsvakurudza zvakaratidza zvikomborero zvakanaka zvekuchengetedzwa kwemhuri muNICU.
Vaya vaimbova vabereki veNICU vakatsvakurudza nyaya dzinokosha kuvabereki veNICU, dzakanyorwa uye dzakagadziriswa, dzakakurukurwa uye dzakashandurwa kusvikira dzasvika pakurongwa gumi pamusoro pekodzero dzinokosha dzavanotenda kuti vabereki vose veNICU vanofanira kunge vakaziva.
Kusiyana neShanduko reMitemo reMitemo, zvisinei, iri Bhuku reRungelo harina hurumende yepamutemo. NICU haaitirwi kubvumirana navo, uyewo haazivikanwi zvikuru. Asi.
Saka zviri kumunhu mumwe nomumwe nevanamukoti, vanachiremba uye vanachiremba, kuti vadzidze zvakawanda pamusoro payo uye vatsvake nzira dzokuita nayo iyo muNICU yavo.
Iye zvino, ngatitarisei chimwe nechimwe chezvitemo gumi zvinosanganisira Bhuku reMatunhu reNICU Parent:
Bhuku reNICU Parent Bill reMutemo kubva ku Preemie Parent Alliance
Bhuku reLungelo rine mazwi gumi aya, sezvakataurwa kubva pamaonero eNICU mwana:
1. Vabereki vangu izwi rangu uye vamiririri vangu ; saka, mitemo yezvipatara, kusanganisira maawa ekushanyira uye kutenderera, inofanira kunge yakaita seyese inokwanisa.
Iyi nhaurwa yekuzarura inosimbisa chokwadi chokuti vabereki vachiri kutambura kuti vaonekwe sevanhu vakakosha veboka rekutarisira mwana. Kazhinji kacho, zvirongwa zvezvipatara zvekare zvakakurumidza kubvisa vabereki kubva kuNICU. Kunyange zvazvo izvo zvingava zvakakosha zvikuru kuitira kuti NICU ipe kuchengeteka nekuchengetedza kwemhuri, kazhinji kacho hazvibviri mhuri kusingakoshi. Uye kuregererwa kwakadaro kunokuvadza zvikuru kuvabereki vanobatana nevana vavo. Saka chirevo chekutanga chinogadzirisa inzwi reBill Rese Rakodzero-chikumbiro chekuisa vabereki pamwe nekukwanisa.
2. Kuti ndive ndakagadzirira kugadzirisa zvandinoda pandinobudiswa , vabereki vangu vanofanira kunzwisisa kundirapa kwangu. Iva nemoyo murefu uye uvadzidzise zvakanaka.
Ichi chiyeuchidzo chisinganzwisisiki kuvashandi veNICU-vabereki vanoda kunzwisisa zvakajeka kwezvose zvinorapwa zvirwere kuitira kuti vakwanise kutarisira vana vavo. Dzimwe nguva vanachiremba uye vanamukoti vanokundikana kuziva kuti vabereki havaiti, chaizvoizvo, vanonzwisisa zviri kuitika.
3. Kushamwaridzana kwakakosha pakukura kwangu. Bvumira uye kukurudzira vabereki vangu kuti vandibate nguva nenguva sezvinobvira.
Mubereki mumwe nomumwe anoda chisungo chakasimba uye chakanaka nechechechecheche. Iyo NICU inokanganisa kubatana uku, nenzira dzakawanda. Kuparadzaniswa kwepanyama, kusava nemaoko-pane kutarisira, kushungurudzika, uye kushungurudzika zvose zvinomira munzira yezviri nyore, kubatana kwepanyama. Saka vabereki ava nemhuri vanoda kunyanya kutarisirwa kubatsira rubatsiro irworwo.
Kupayona NICUs vave vachinyanya kuda kutamisa vana kubva pamibhedha yavo yakaoma kwazvo yezvokurapa uye vanovaisa ganda kuti vashande nevabereki vavo kare uye mberi, izvo zvinobatsira vabereki kuti vanzwe vachibatana. Kutsvakurudza kunoratidza kungaroo kangaroo inobatsira .
4. Batsirai kugadzirira vabereki vangu kuti vave vangu vanonyanya kutarisira pandinoenda kumba. Vakukurudzire kuti vatore chikamu chekutarisira kwangu kwezuva nezuva sezvinobvira.
Kuchengeta mwana wavo ndicho chinonyanya kukosha vabereki. Kana vabereki vasingakwanisi kupa chero chinhu chipi nechipi chekutarisira kune vana vavo, zvinowedzera kuora mwoyo. Nekuedza zvishomanana, vabereki vanogona kudzidziswa zvakawanda zvezviitiko zvinotarisirwa izvo vanamukoti vanopa. Ichi chinhu paBill of Rights hachikoshi kwete chete kana vana vachienda kumba, asi kunobatsira nekubatana munguva yeNICU.
5. Kudyisa kunobatsira vabereki vangu kuti vanzwe kuti "zvakajairika." Ndapota vabvumira kuti vandidye nehombodo kana sezamu, chero ipi zvayo iri kushanda zvakanakisisa ini nevabereki vangu. Batsira kuvimbisa amai vangu kuti zvakanaka kana asingabereki mukaka.
Apo zvishoma zvishoma zvinonzwa zvakajairika muNICU, ndezvechokwadi kuti kudya mwana kunonzwa sechinhu chinokosha mubereki, uye inokosha zvikuru sechikamu chekubatana kwechibvumirano.
Izvi zvinonyanya kukosha kuti vanamukoti veNICU vanzwisise uye vashandise. Vamwe vanamukoti vanogona kuva nenzira yekubatwa mubasa ravo rinorema, kazhinji vachidyisa vacheche ivo pachavo kana zvichiti zuva ravo richafamba zvakanaka. Uye hazvirevi kukuvadza, vanongova nebasa rakaoma uye rakabatikana kuita.
Asi iri Bhuku reHurumende reZvirevo ndiro chiyeuchidzo chinokosha chokuti kudya, kunyange zvichida kuderera kana kuchiitwa nevabereki, kunokosha zvikuru mukubatana kwavo. Pese pazvinenge zvichibvira, zvakakosha kuchengetedza chiitiko ichi kuvabereki.
6. Kana ini, kana mumwe wevanin'ina vangu, tichipfuura tiri muNICU, rangarirai kuramba muchireva kwatiri sezvizhinji (twin / triplet / quads, nezvimwewo). Zvakakosha kuvabereki vangu kuti iwe unoramba uchikudza nekubvuma humwe hwehupenyu hwedu.
Chikumbiro ichi chinobva kuvabereki vakabudirira mumatambudziko avo pachavo. Vari kuita kuti munhu wese azive nzira yakanakisisa yekubata nayo mamiriro ezvinhu akaoma.
Kazhinji, vanhu havazivi kuti vanofanira kutarisira sei uye vanofunga nezvekufa kwecheche, kunyange vanamukoti veNICU, uye vashandi. Hapana munhu anoda kuramba achigumbura mubereki ari kuchema uyo akarasikirwa nemwana , kazhinji kazhinji zvinoreva kuti vanhu havaiti nyaya yacho, vachitarisira kudzivisa mamwe manzwiro.
Asi vabereki vanotaura kazhinji kuti vanofarira kuti kurasikirwa kwavo kubvumirwe. Havana kumbokanganwa mwana wavo, uye vanonzwa shungu yakawedzerwa apo vose vanovapoteredza vanoita sevanokanganwa. Saka ndapota famba mberi uye uyeuke kutaura nezve mwana akafa - vanozvifarira.
7. Kunyange zvazvo ini ndingadaro ndiri nguva yekupedzisira-preemie , NICU inogona kuva nzvimbo inoshungurudza zvikuru kuvabereki vangu. Iva nechokwadi kuti vanogamuchira zvakadai seTLC, ruzivo, dzidzo uye semhando zhinji sevabereki ve micro-preemie shamwari yangu.
Ichi chiyeuchidzo chakanaka chekuwedzera kutarisirwa uye kufunganya kwevabereki vose, pasinei nekureba kweNICU yavo kugara kana kuoma kwemamiriro emwana wavo. Kunyange zvazvo mwana angave ane nguva yakagadzikana uye iri nyore muNICU, vabereki vavo vachiri kutambudzika, vanotya, uye vakakodzera kunyatsoteerera.
8. Kurudzira vabereki vangu kuenda kumisangano yekutarisira uye kuronga nguva dzose. Icho chinhu chinonyanya kukosha chekuchengetedzwa kwemhuri uye vanobatsira kudzidzisa vabereki vangu nezvekufambira mberi kwangu uye kufara kwenguva refu.
Chii chiri musangano wekutarisira? Iko musangano weVabereki veNICU, vanamukoti veNICU, vanachiremba, vanachiremba, uye chero ani zvake anobatanidzwa mukutarisira mwana. Uyu mukana wevose vanobatanidzwa muhupenyu hwemucheche kuti vataurire zviri kuitika uye zvinangwa zvei munguva yemberi.
Zvinosuruvarisa kuti, vamwe vabereki veNICU havasati vambopiwa mukana wokuva nehurukuro yekuchengetedza, uye pasina iyo inosanganiswa mukugadzirisa chisarudzo, vabereki vari kusiiwa sevanomiririra muhupenyu hwemwana wavo.
Kuchengetedzwa kwemitemo kunopa vabereki nzvimbo yavo yakakodzera pamutambo, semunhu anokosha anonyanya kufarira murwere, uyo aripo uye achave anokosha zvikuru muupenyu hwomwana.
9. Vabereki vangu vane kodzero yekuziva zvose pamusoro pangu. Regai vawane ruzivo rwakasununguka kumabhuku ezvokurapa uye vanokurudzira mibvunzo yavo.
Zvinosuruvarisa, vabereki vanowanzorambidzwa kupinda kune zvakadzama zvinyorwa zvekutarisira kwevana vavo. Uye nepo vabereki vakawanda vasingatarisi kuigamuchira, vabereki ivavo vanozvida nekuda kwayo vanofanira kunge vachikwanisa kuwana.
Inowanzoonekwa sekanakisisa tsika kune avo vasiri vadzidzisi vakarovedzwa kuti vaongorore marekodhi ane nhengo yeboka rehutano hwehutano iripo, kuitira kuti vabatsire kutsanangura zviri mune zvinyorwa. Zvechokwadi, dzimwe zvipatara zvinoda izvi. Sei? Iyo nzira yakasiyana-siyana yekurapa uye yekuyamwisa chati, pamwe chete nehupiritsi yezvokurapa izwi, inogona kukonzera kuvhiringidzika uye kunokonzera kushungurudzika kana kuverengwa pasina chero njere uye kutungamirirwa. (Zvakadini kana iwe usingarambi kuwana zvinyorwa zvako?)
10. Vabereki vangu vari kutarisana nematambudziko akawanda. Ndapota ivai nemoyo murefu, teererai kwavari, uye mupe chikwereti chenyu. Shandisai ruzivo pamusoro pezvinhu zvakadai semapurogiramu ekutsigira-ve-peer, mapoka ekutsigira, nekupa mazano, izvo zvichabatsira kuderedza PTSD, PPD , kuzvidya mwoyo, uye kuora mwoyo.
Iko NICU ichokwadi, zvakaoma chaizvo kuvabereki . Kunyange zvazvo basa guru reNICU nderokuchengetedza mwana, chokwadi ndechekuti vashandi veNICU ndivowo vakakodzera zvikuru kuti vave nechokwadi chokuti vabereki vari kurarama vane hutano uye vakachengeteka kuburikidza nazvo. Sei? Nemhaka yekuti njodzi dzekupera kwepabonde, PTSD, nezvimwe ndezvechokwadi, uye vashandi veNICU vari kubatana nevabereki zuva rega rega. Izvi zvinoita kuti vakwanise kumira kuti vapindire uye vabatsire vabereki kuwana rubatsiro rwavanoda.
Vakawanda veNICU havana hutano hwakakwana kune vashandi vavo kunze kwekupa kutarisirwa kwepfungwa nekuongorora vabereki. Ichi chirevo chekupedzisira muBhuku reHurumende chikumbiro cheNICUs kwose kwese kubvuma basa ravo, nekupa nekuchengetedza uye zvimwe zvinhu kune vamwe varwere-vabereki.
IPPA inofarira munhu mumwe nomumwe uye NICU's kudhinda nekuratidzira Bato reMitemo Yadzo dzeMutemo. Inzwa wakasununguka kutora kopi yako pachako, kana kuti taura nePPA kana uchida kuramba uchitaura nezveNICU Parent's Bill Kodzero yekushandisa munzvimbo yako.
[Bhuku reNikodzero dzeVabereki veNICU Parent rakanyoreswa pano nemvumo yePPA, May 2016]